Piloting an infrastructure for the secondary use of health data
In October 2022, the HealthData@EU Pilot project started, bringing together 17 partners including health data access bodies, health data sharing infrastructures and European agencies. The HealthData@EU Pilot project is a two-year long European project co-financed by the EU4Health programme. It will build a pilot version of the European Health Data Space (EHDS) infrastructure for the secondary use of health data “HealthData@EU” which will serve research, innovation, policy making and regulatory purposes. The project will connect data platforms in a network infrastructure and develop services supporting the user journey for research projects using health data from various EU Member States. It will also provide guidelines for data standards, data quality, data security and data transfer to support this cross-border infrastructure. Priority services include a metadata discovery service and a common health data access request. The consortium will collaborate closely with the European Commission and their team working on developing the central services for secondary use of health data.
The project website is available here: https://ehds2pilot.eu/