2022 - 2024

European Health Data Space (EHDS)

Piloting an infrastructure for the secondary use of health data

About the project

The HealthData@EU Pilot project is a two-year long European project co-financed by the EU4Health programme. It will build a pilot version of the European Health Data Space (EHDS) infrastructure for the secondary use of health data “HealthData@EU” which will serve research, innovation, policy making and regulatory purposes.  The project will connect data platforms in a network infrastructure and develop services supporting the user journey for research projects using health data from various EU Member States. It will also provide guidelines for data standards, data quality, data security and data transfer to support this cross-border infrastructure. Priority services include a metadata discovery service and a common health data access request. The consortium will collaborate closely with the European Commission and their team working on developing the central services for secondary use of health data.

EUPHA’s role as a partner

In the EHDS2-Pilot project, EUPHA partially led the work on dissemination and communication, ensuring that project results were widely shared with policymakers, researchers, and other key stakeholders. Its activities included website development and hosting, stakeholder engagement, communication strategy, and visual identity management and the coordination of a supplement in the European Journal of Public Health to maximise the project’s impact.

Financial source

Funded by the European Union’s EU4Health programme under the grant agreement Nº 101079839.

Consortium partners

  • Health Data Hub

  • HDL

  • Instituto Aragonés de Ciencias de la Salud

  • EBRAINS

  • Sciensano

  • The Norwegian Directorate of eHealth

  • ECDC

  • Elixir

  • Finnish Social and Health Data Permit Authority Findata

  • EESZT National eHealth Infrastructure

  • European Medicine Agency

  • Orphanet

  • Finnish Social and Health Data Permit Authority Findata

  • Croatian Institute of Public Health

  • BBMRI-ERIC

Articles and publications

European Health Data Space (EHDS) research outputs include scientific publications and poster presentations. Some of the most recent examples are showcased here.

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